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Chronic Medical Conditions

Chronic Medical Conditions

15-18% of children in the U.S. are living with a chronic medical condition such as asthma, diabetes, cancer, cystic fibrosis or spina bifida. These conditions present a number of challenges and can be difficult to cope with. These children have to manage a number of responsibilities including frequent doctor’s visits, scary and painful medical procedures, taking medications, and dietary restrictions/limitations. As a result, they are at risk for experiencing depression, family conflict, and have difficulty connecting with children who share and understand their experience. There are a number of resources available for children and families living with a chronic medical condition.

Helpful Websites

Juvenile Diabetes Research Foundation International
Candellighters: Childhood Cancer Foundation
American Academy of Child & Adolescent Psychiatry
Brave Kids
Center for Effective Parenting
Seattle Cancer Care Alliance
Medline Plus: Juvenile Rheumatoid Arthritis
Arthritis Foundation: JRA
University of Maryland: Pediatric Asthma

Books for Parents & Caregivers

The Ten Keys for Helping Your Child Grow Up with Diabetes
By Tim Wysocki

 

Sweet Kids: How to Balance Diabetes Control & Good Nutrition with Family Peace
By Betty Page Brackenridge & Richard R. Rubin

It’s Time To Learn About Diabetes – A WorkBook On Diabetes For Children
By Jean Betschart, M.N., R.N., C.D.E.

Understanding Diabetes – A handbook for people who are living with diabetes
By H. Peter Chase, M.D.

 

 

Living with Juvenile Diabetes: A Practical Guide for Parents and Caregivers
By Victoria Peurrung

 

Books for Children & Teens

Diabetes Burnout- What to Do When You Can’t Take It Anymore
By William H. Polonsky, Ph.D., C.D.E.

 

Little Tree – A Story for Children with Serious Medical Problems
By Joyce C. Mills, Ph.D.; Illustrated by Michael Chesworth

 

In Control- A Guide for Teens with Diabetes
By Jean Betschart, M.N., R.N., C.D.E. & Susan Thom, R.D., L.D., C.D.E

 

Hi, My Name is Jack – A book for the healthy siblings of chronically ill children
By Christina Beall-Sullivan, M.S., A.P.R.N.